About how publicity (in the Habermasian sense, for nerds) affects illness. It’s true that when my issues lacked a name/lacked a clear diagnosis it was very frustrating because people want to know what you have so they know how to act. And obviously you want to know what you have. The author seems to think having a highly Googled disease gives you an empathy advantage—that the woman in line and the waiter would have acted differently if they knew what dystonia was—I’m not sure if that is true. It smells a bit like an “awareness campaign” to me.  But I do know that telling your story is always important.